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Palliative Care at 30-Something : What Does it Mean? (Part II)

This is a long overdue post, so I will have to backdate it…  I’ve actually been back two times since!

Photo Credit: pcdsys.com

Photo Credit: pcdsys.com

See Part I here.

Part II:  [April 13, 2013]

First Visit:

So I had my first visit with Palliative Care a few days ago. This Palliative Care department has been touted as a great group. They are located in the Cancer Center at the largest and most lauded hospital in our region, so I had high hopes.  I was both nervous and excited about the appointment because I had also heard the director of the department speak at a breast cancer conference a year or so ago.  It was a refreshing talk and I figured that if everyone shared his attitude, this was going to be an informative appointment at the very least.  And, at most, it could change my life in some way.

It got off to a slow start.  The specialist took a good look at my medical record — every last bit of it is available through the hospital’s online database.  Then he asked a series of questions to ascertain what my life quality is like these days.  We discussed the ‘why’ behind my oncologist’s referral.  He did a physical exam and then talked with me about a treatment plan.

Before you read on, I will let you in a little secret.  I used to be what my past doctors referred to as “medication non-compliant.”  I did not (do not) like to take drugs — especially painkillers — unless I REALLY needed to.  And I would just go off pills just because I didn’t want to take them anymore [despite those yellow and black warning labels that said scary things like, “Do not discontinue abruptly,” or “Do not skip a dose of this medication.  Serious complications could occur.”]  I may have pretended to be a good patient, but I was not.

This newsflash may be a little/lot surprising when you look at the list of medications I am currently — and dutifully — taking.  Since the two hospitals and the independent cancer center I go to all share the same electronic charting database (e-Record), a complete list of all of my meds is available in my virtual chart.  And every time I sit down with any of my doctors, that list of meds is reviewed and I am asked if I am taking everything as prescribed and a box is ticked to indicate my answer for each. There is nowhere to hide.  And they print this list for me every time I walk out the door, so it’s easy for me to just whip it out to count the number of prescriptions I’m on.

The back corner of my kitchen counter...

The back corner of my kitchen counter…

21.  I just counted 21 different prescriptions.  That is a lot of pill bottles for someone who doesn’t like to take drugs. And a lot of pill bottles to open a few times per day. But life has changed in every way in the past three years.  Taking pills I don’t want to take is just par for the course. But I still haven’t given in to the painkillers entirely.  I say that I take them as prescribed.  But I don’t.  And I’m sure my oncologist has figured that out.  If I took the percocet as prescribed, the 180 pills she writes for each month would only be enough to get me through 2 weeks.  But somehow I always manage to stretch them all the way to our next visit… I’m sure she’s noticed that.

So when I decided that I would be completely honest and tell these doctors what I actually take, I figured it would be a painful appointment. But it wasn’t. Dr. H thought that continuing with the Percocet (Oxycodone) I finally surrendered to taking two summers ago was a good plan.  But he said that it would be important for me to begin taking the dose actually prescribed. He also said that rather than waiting until the last possible moment to take a dose, I should be on a regular schedule of every 4-6 hours.  The premise is that keeping your pain under control is a much healthier way to live than chasing the pain and poorly managing it.  It is apparently much easier to keep pain under control than it is to get it under control. But I knew all this from the countless times it had been explained to me in appointments, after surgeries, in the hospitals, etc.  This was just the first time I was really prepared to listen.

Dr. H also asked that we increase my Neurontin (Gabapentin) prescription from 300 mg to 600 mg per dose. 3 times per day and at bedtime.  This would help with my nerve pain and issues (left over from Taxol chemotherapy and a left-sided radical mastectomy — I did have both breasts removed, but the mastectomy on the right side was far less invasive).  It might also help with the hot flashes and energy-sucking night sweats I have been experiencing since an emergency hysterectomy / salpingo-oopherectomy last year at the age of 35. Dr. H said that we would do this for a few weeks until I had adjusted and then we could increase.  He also said that when I returned, we would discuss the addition of methadone or morphine to the schedule.

Whoa.  What was that?  Methadone or morphine?  Really?  From what I’ve heard of this group, it’s difficult to get drugs out of them, so I have to say that hearing this was a bit of a shocker.  Dr. H stepped out to get the Director of the group.  I figured Dr. Q would set the record straight and take the morphine and methadone off the table.  I mean, I am 30-something years old, I shouldn’t be preparing for a life on these drugs, right?

Photo Credit: Stinkin-Thinkin.com

Photo Credit: Stinkin-Thinkin.com

Then my doctor’s boss came in, reviewed my chart, and gave his take on what the treatment plan would be.  It matched up identically.  Even the morphine/methadone part.  They seem to feel it is time for this and that there is no point in suffering needlessly anymore.  That was a sobering thing to hear.  I will have to do some research for next time because all I know of methadone has to do with recovering heroin addicts lining up to get their methadone so they can cope with the drug withdrawal. I’m hoping they have something a little different in mind for me?!

In the meantime, I am going to work on getting on the prescribed schedule and on being a decent patient!  Something tells me that I may have to add a column with my name to the sticker chart I keep to help the boys behave.  Maybe if I take all my meds as prescribed I can get a Hot Wheels car, too!

Weekly Photo Challenge: Escape = The Sea

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It is safe to say that the Weekly Photo Challenge topic for this week called my name.

ESCAPE means different things for different people.  But if you know me — either through this blog or in “real life” — you know that my favorite escape is almost always water-related.

Here are my photos for this week (all taken during a holiday in Puerto Rico):

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cancerinmythirties.wordpress.com breast cancer thirties 30's 30s young

As always, thank you for visiting.  And if you’d like to participate in the challenge, just click here:

The Daily Post’s Weekly Photo Challenges

Harmonic Convergence

A really important read…

Scorchy's avatarThe Sarcastic Boob

When the planets align in the breast cancer universe things get interesting.  It has been an unprecedented four-five weeks.  The first planet to get into position was that of oral arguments delivered to the Supreme Court of the United States on the legality of the U.S. Patent and Trademark Office’s practice of granting patents on human genes.  The next two planets to align were the publication of Peggy Orenstein’s game changing New York Times article “Our Feel-Good War on Breast Cancer” and the news that Nancy G. Brinker™ received a 64% pay raise.  The fourth planet to line up was the announcement that a Reader’s Digest poll named Brinker™ one of America’s most trusted celebrities (a list that includes Pat Sayjak, Clarence Thomas, and Rachel Ray).  The fifth planet to assume its position was the death of breast cancer advocate Barbara Brenner.  And the sixth and final planet–with rings and…

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Mistaken for the Bride of Frankenstein — Part II

[May 6, 2013]

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So I had the Mohs Microsurgery / Chemosurgery last Tuesday morning.  I was grateful for all of the kind comments on Mistaken for the Bride of Frankenstein and Skin Cancer, Too?  Really?!  You really gave me the courage to face another surgery and another type of cancer.  Of course this surgery was nothing compared to the others and this cancer was just a bump in the road, but I think I would have continued to push this surgery out even further if it weren’t for all of you.

I have been meaning to post about what the experience was like, but it was such a difficult week that I just couldn’t manage it.  And then I thought the Frank and Nancy post was much more important. I will begin with what has happened to my face since the surgery.  Quite simply, my face has swollen beyond recognition.  I wish I were exaggerating.  On a positive note, they say it will get better — but that it will take a week or two to do so.  I’ll take it — I’m just glad this won’t be permanent!  And so are the kids, who looked horrified when they saw me this morning and told me that it was getting worse! Back to the procedure.

As you know, I was quite nervous about this one!  Fortunately, my lovely friend jme was here and she not only made me feel better about going, but she got the boys ready for school so we could leave at 7:40 a.m. for the hospital.

H (husband) dropped me off in the hospital loop and I made my way up to the Mohs Surgery Department.  I haven’t mentioned it before (this is another post I haven’t gotten to!), but we have had a photojournalism student (Jennifer) following us around for the past couple of months to document our lives as a family dealing with the effects of cancer.  Jennifer met me just outside the doors and began taking photos as I walked to the check-in desk and made my way to the waiting area. H met us in the waiting area about 10 minutes later.  He promptly found a magazine and took a seat.  When they came to collect me to prep me for the surgery and asked if I would like to bring someone back with me for this part since I had skipped out of the pre-op / question-answering appointment, H didn’t look up from his magazine.  Apparently, reading about the life and times of Billie Joe (Green Day’s frontman) was more riveting than what was about to happen to my face and asking questions about the cancer growing on my forehead.  Normally this wouldn’t bother me.  But this morning it did because I was so unenthusiastic about the surgery that I think I was visibly shaken.  So when Jennifer asked if she could follow me back, I did not object.

We were taken to a large, bright room with a special chair — it looked like one of the birthing chairs from Star Trek: The Next Generation — positioned in its center.  Jennifer asked the nurse if she would be allowed to take photographs, so the nurse left to see if the surgeon would allow this.  When she came back with an “okay” for photographing everything but the surgery, the prep began.

A second nurse arrived, and after asking me some questions and cleaning my forehead, they began injecting my forehead to anesthetize the area. After massaging the anesthetic in, waiting, and testing the area to see if it was truly numb, the nurses left to get the surgeon.

When Dr. B arrived, he discussed the procedure, used a black marker to outline the area he’d be cutting, and described what my scar would look like. Then he asked if I had any questions.  At jme’s urging, I asked if he could make my scar look like Harry Potter’s.  He smiled, said yes, and walked out, promising to return when my prep was finished. After he left, the nurses draped my head with sterile cloths, rechecked the numbness of the area, and asked Jennifer to leave.

When Dr. B returned, he looked at my online chart and said that he thought it was safe to say that I had been through a lot.  So he then assured me that he would do his best to get as much as he could in the first round so he wouldn’t have to put me through anything more than necessary.  I thanked him and then tried to go to my happy place as I felt the cold instruments touch my head. I’m not sure how much time passed before he said that he needed the cautery.  I asked if I had forgotten to mention that I was on blood thinners.  Yes, I had.  I could smell burning flesh.

Then he continued, and cauterized more because I continued to bleed. And eventually he was done.  He cauterized some more, and then they put a pressure bandage on my head, and escorted me to the waiting area so we could see if he had taken enough to get clean margins.

While I waited, my surgeon, who is uniquely qualified to double as a pathologist, looked at slides of the tissue he had taken to determine whether he was able to get clean margins. As I waited, before and after my surgery, I watched as a nurse came to the waiting area to tell several other patients their results.  My surgeon had managed to get clean margins for each of them.

As I read an issue of Coastal Living, I couldn’t help but notice that I was the youngest patient in the packed waiting room.  By far.  I think I could safely say that most of the people there were double my age.  This fact wasn’t lost on Dr. B, either.  He told me that it is not uncommon for people to develop skin cancer.  It’s just fairly unusual to develop it at my age.

Now it was my turn to get my results.  I was told that he had also gotten clean margins for me.

The nurses brought me back to the surgical room.  They asked Jennifer not to follow. They whipped out the needles to numb me again.  When this was done, Dr. B came back in, reiterated that he had managed to get clean margins around the cancer.  Then they draped me with blue sterile cloths again.  And Dr. B undid my pressure bandage and began cauterizing me again.  Then he started to stitch me up.

When he was through, he apologized for everything I was going through and wished me well.  He told me that I had a much higher risk of developing future skin cancers and asked me to schedule a full skin check in 6 months.  He said that I would always need to do this now and that I would need to be more vigilant about checking myself and being protected in the sun.  I neglected to tell him that being more vigilant would require staying indoors entirely, even in our grey city.

After he walked out, one of the nurses asked if I’d like to see it.  Of course I did!

She handed me the mirror and “That’s big!” was the first thing I said.  Dr. B could have made a nice Harry Potter scar and it would have been the same length!  The nurses reassured me that it wouldn’t be that noticeable one day and they wrapped me up with a pressure bandage and went over the care instructions.

It wasn’t long before I was finished and had an appointment scheduled to remove my stitches in a week (tomorrow).  I was there about 5 hours, but it didn’t feel like it.  It really wasn’t as bad as I had anticipated.  And I am glad that I did it.

Or at least I was until the swelling began.  It began to appear on Day 3.  By that evening I was so swollen that even H thought I should call the surgeon’s office after hours.  When I did, they gave me a few instructions and scheduled me to come back to the hospital in the morning.

At the hospital I was told that the swelling was a result of an excessive amount of bleeding.  My surgeon said this was pretty unusual.  He seemed to feel that my “young” age and skin were partially to blame.  He said that it would get worse before it would get better and that it would soon look bruised (and give me a set of black eyes).  Lovely!

Weekly Photo Challenge: From Above

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The Daily Post’s Weekly Photo Challenge for this week asks participants to take a photo or photos from above.

Here are my selections, taken from a trip to Hawaii that feels as though it was a lifetime ago now!

I hope you enjoy viewing them as much as I enjoyed taking them…Okay, half as much (it was Hawaii, after all!)

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If you’d like to participate in the challenge, just click on the link below.

Weekly Photo Challenge: From Above

And, as always, thank you for visiting!

Pirate Treasure and Minecraft TNT

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Every year, my twin sons choose a something they’d each like me to capture in a cake.  This year, W chose a pirate treasure chest and M chose a block of TNT from Minecraft (a video game).

I’d love to share the cakes with you — along with just a handful of my favorite memories from their birthday parties (a kid party for 17 of their closest friends! and a family party)…

I’m hoping that a birthday party post will be coming soon?…

Until then, thanks for visiting!

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Brinker Stinker: A Reminder of What Susan G. Komen is Not About . . .

cancerfree2b's avatarcancerfree2b

This blogging thing can sometimes feel like a burden. It seems that I never know how to begin or finish a post anymore. I want to write, probably need to write, and most definitely I feel a responsibility to write. Especially when it has been the kind of week this past week has been in the breast cancer community.

In the past week, two of my friends have had cancer return and a third friend, who has been living with metastatic breast cancer for some time, is now dealing with very severe health problems due to her treatment (to put it mildly, she is in a great deal of pain). This is part of the world of breast cancer. It is not the pink bowed version of things that the Susan G. Komen Foundation sells (mammograms and early detection equal a cure, etc.). Well, clearly mammograms and early detection do…

View original post 1,381 more words

Weekly Photo Challenge: Culture

The Daily Post’s Weekly Photo Challenge topic for this week is Culture.

These photos miss the mark a bit, but I like them just the same.  I hope you don’t mind!  They were taken in Old San Juan and San Juan, Puerto Rico on my bucket list adventure.

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Mistaken for the Bride of Frankenstein

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Photo Credit: frankensteinhalloweencostume.com

You may recall a post I wrote last month about skin cancer and learning that I have been growing said cancer on my forehead: Skin Cancer, Too?  Really?!

Well, despite my attempts to delay the surgery I need to (hopefully) eliminate this cancer, the day of this unpleasant event is now upon me.

In a few short hours I will be headed to the hospital for chemosurgery / Mohs micrographic surgery with our area’s only chemosurgeon.

And I am biting my nails.  They’ve told me that I should plan to be there for anywhere from half the day to the entire day.  They won’t know how long until the surgery is underway and they can see how extensive the cancer is — and what will be required to close the area up.

Apparently I am supposed to be comforted by the fact that my surgeon is excellent at doing reconstruction and skin grafts.  Let me assure you that I am not.  I would rather have not known that he may need to exercise these talents with me.

I don’t know why I am so concerned about this surgery.  I’ve had more than my fair share of surgeries and procedures.  And most of them were far more invasive than what I expect this one to be.  I’ve been cut into so many times that if I lifted my shirt, you might mistake me for the bride of Frankenstein.

So this shouldn’t be a big deal in comparison, right?  (Well, that’s what I’m telling myself at least.)

And it’s for a good cause.  I am actively growing cancer on my head — I can see it growing from week to week — so I should want to get rid of it.

But I am still scared.

Maybe it’s because I’m a bleeder?  And I’m on a blood-thinning regimen.  Just the biopsies required to get this diagnosis were a clear sign that bleeding will be an issue for me.

Maybe it’s because they’ll have a scalpel touching my head and I don’t yet know how deep they’ll have to cut?

Maybe it’s because I’ll be awake and I’d much rather be asleep?

Or maybe it’s just because I am so tired of cancer and side effects and surgeries and procedures and my body is weathered and worn out.  And I just want to feel like a regular thirty-something-year-old with regular thirty-something-year-old problems.

Or maybe it’s just because no one likes surgery — big or small — and I am only human.  (Of course if I lift my shirt, you may think otherwise!)

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Photo Credit: mubi.com

The Battle We Didn’t Choose

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Jen on Beach
Photo Credit: http://mywifesfightwithbreastcancer.com

Continue reading

my suns blog

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[A Title & Post Written by My Son, M — all by himself!]

My mom has cancer.shes bin acting really tired.but I understand because she

has cancer.

I like watching movies with her and all that…

AND I love  going on vacation too.

my favorite place to go

 is florida.

sometimes I want my mom to play video games with me but she says shes to tired to play.I miss the old days.  🙂

And Tonight We Danced…

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breast cancer thirties 30s 30's cancerinmythirties.wordpress.com dancing kids twins

Tonight we danced…
You and you and I…
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We danced in the living room, between chairs
and beneath shiny blue paper stars and an off-white sky
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Some days I wonder when it will all end
Some nights I lie awake knowing it can’t last
And fearing the day when you will no longer have a Mom
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But for now, for tonight,
You are mine
And I am yours
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For tonight your giggles will echo as you step on my toes
And we will dance and twirl ’til our heart’s content
You and you and I…

Weekly Photo Challenge: Change

This week’s Daily Post Photo Challenge topic is change.  

There are few days as representative of change in a woman’s life as her wedding day.  These photos are from my lovely sister’s wedding.

 

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The Beautiful Bride & Groom

 

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A rainy wedding day… Two of my sisters & me…

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The Wedding Cake

 

As always, thank you for visiting.

If you would like to participate in a photo challenge, just click one of the links below:   

http://dailypost.wordpress.com/2013/04/12/weekly-photo-challenge-change/

http://dailypost.wordpress.com/category/photo-challenges/

Daily Post: The Satisfaction of a List — Things I’m Afraid I Won’t Get to Do Before I Die

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My Boys

The Daily Post’s Daily Prompt for today is: The Satisfaction of a List.
You are asked to make a list, any list, and share it with your readers.

Though I don’t usually manage to churn out responses to the Daily Writing Challenges, this one caught my eye because I am a lister and I love lists.

The list I’m sharing with you:

20 45 Things I’m Afraid I Won’t Get to Do Before I Die:

  1. Watch my kids go off to Fourth Grade
  2. Put my toes in the ocean again
  3. Dance with my sons at their weddings in 15 years or so
  4. Have my overdue eye exam — and get stylish new glasses
  5. Hold a new baby
  6. Be my youngest sister’s matron of honor (she’s 20)
  7. Get a new puppy
  8. Hold my grandchildren
  9. Finish the next season of The Walking Dead
  10. See Mumford & Sons in concert
  11. Have the option to opt out of going to my 10-year college reunion (because I don’t feel like going, not because I’m dead)
  12. Visit my family’s homeland (England/Scotland)
  13. Celebrate my sons’ 10th birthdays
  14. Publish my novel
  15. Finish writing said novel
  16. Publish a children’s book
  17. Use my teaching degree
  18. See some of my dearest friends again — jme, Jin, Loren, Sue, Sheri, Gil
  19. Make it to another winter (and I hate winter)
  20. Watch my children graduate from (and start!) high school
  21. See the love of my life again
  22. Experience what it’s like to have hormones again (or go a day without being hot and drenched from night/day sweats one minute and then shivering cold the next)
  23. Shed tears as I pack my kids up for college
  24. Shed tears as I wave my kids off to middle school
  25. See my mother happy
  26. Get divorced
  27. Be with someone who truly cares for me & who will miss me when I’m gone
  28. Listen to a lot more music
  29. Learn to play piano
  30. Live a day where money doesn’t keep me from doing the things I want to do for my kids
  31. Travel more
  32. Start a new job
  33. Hear that there is a cure/vaccine for cancer
  34. Show my kids the world
  35. Fall asleep snuggled next to my kids and my dogs more
  36. Experience a pain-free day
  37. Remember what it’s like to have energy
  38. To stress out about doing next year’s taxes
  39. Turn 40
  40. Turn 50
  41. Turn 60
  42. Turn 70
  43. Grow old
  44. To let go of everything that is holding me back…
  45. To say that I truly lived — and mean it…

cancerinmythirties.wordpress.com breast cancer thirties 30s young bilateral mastectomy death loss grief

If you’d like to respond to a Daily Post Daily Prompt, just click one of the links below.

The Daily Post

The Daily Post: Satisfaction of a List

Palliative Care at 30-Something. What Does it Mean?

Palliative Care Integration Model cancerinmythirties.wordpress.com breast cancer thirties 30s 30's death dying hospice

Palliative Care Integration Model
Image Credit: University of Alabama School of Medicine

If you’re like me (until fairly recently, anyway), when you hear the words “Palliative Care,” you think HOSPICE.

Hospice is a scary word in the cancer world.  At least that’s been my experience.  In Cancerland, nothing comes after hospice.  That’s it.  Game over.

So when you are a 30-something-year-old and you hear your oncologist tell you that she wants you to see a Palliative Care specialist, your heart might skip a beat.  I know mine did.

For me, I think it is because I was there as my grandparents went through cancer and treatments and eventually ended up on their deathbeds.  I was there when hospice began for them.  And the fact that the start of hospice coincided with the start of their palliative care was not lost on me.  So it’s only natural for me to associate one with the other, right?

Things were different years ago.  My grandmother suffered with her shiny bald head marked with surgery scars and radiation tattoos and burns from the treatment for her brain cancer.  She suffered with no relief until her poor shiny, wounded head lost its luster.  She suffered until hospice started.

The hospice folks came into her home, set up a hospital bed in the dining room, and they began her palliative care, finally, with some heavy duty drugs.  But she suffered until that point.  And even afterward because the pain control wasn’t great.  It was almost a relief when she slipped into a coma and finally died because it was so painful to watch her suffer and to hear her moan in her sleep when we knew that all hope was lost.

My grandfather’s scenario was different.  I’ve blocked out the length of time he actually suffered with lung cancer.  I was there, so I should know.  But it is too difficult to remember how long the cancer actually took to kill him.

What was different about his experience?  When he was ready for hospice, they didn’t come to us.  We moved him to a hospice.  This was where his palliative care began.

But it only lasted for a day.  We moved him to the lovely hospice home, they started him on morphine and gave me special swabs to keep his cracked lips moist.  The volunteers were warm and comforting and did their best to keep my grandfather pain free.  He died that night.

So it’s likely that my ideas about palliative care and hospice are rooted in my experiences.  I learned that palliative care was end-of-life care. But this is not true.  At least not anymore. So what is it, exactly?

From the Cancer Center’s brochure:  

Palliative Care is medical care focused on relief of the pain, symptoms and stress of serious illness.  The goal is to help people live comfortably and to provide the best possible quality of life for patients.

Patients struggling with the uncertainty of serious illness need comprehensive care and support.  They need to know they aren’t alone.

What Can You Expect from Palliative Care?

  • Relief from distressing symptoms such as pain, shortness of breath, fatigue, loss of appetite, difficulty sleeping
  • Improved ability to carry on with your life
  • Improved ability to tolerate medical treatment
  • Better understanding of your medical condition and medical choices

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Doesn’t sound so bad.  Sounds good, actually.  So I’m far less apprehensive (and maybe a little excited?) about my appointment at 8:30 this morning.  And I feel pretty lucky to be going to the Cancer Center at the best hospital in our area to meet with a specialist on their team.  Of course I’d feel luckier to not be 30-something and in need of their services, but I’ll take what I can get at this point.

I will let you know how it goes…  Though Percocet (Oxycodone) has been a faithful friend for a long while now, I’m hoping there might be something that works a little/lot better — and that’s less liver toxic — in my future.

We shall see…  Good night…

Weekly Photo Challenge: Color

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I love The Daily Post’s Weekly Photo Challenge theme for this week — Color.

Though you’d never surmise it from my clothing (my wardrobe consists primarily of 3 hues (if you can call them that!) — brown, grey and black)), I love color.

I have a difficult time imagining a world without it.  I have often thought that of all the senses to lose, I would likely miss sight the most.  Of course losing the ability to taste during chemo made me question the theory I developed during my dismal ‘what if’ game.  But, in the end, I reverted to my original thought — that it would be more upsetting to live in a world without color.

Its presence lift our spirits.  Its absence brings us down.  It is powerful and beautiful.

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s color weekly photo challenge daily post
As always, thank you for visiting.

If you would like to participate in this week’s photo challenge, please click on one of the links below:

Weekly Photo Challenge: Color

The Daily Post’s Weekly Photo Challenges

Weekly Photo Challenge: A Day in My Life

Though this wasn’t compiled in time for The Daily Post’s Weekly Photo Challenge last week, I did pull together the images for this purpose, so I will post with this title:

Weekly Photo Challenge: A Day in My Life — School Break

I hope you enjoy the photos.  And I hope those of you with children home on winter break are managing / enjoying the time!

Thanks for visiting, always!

Happy Easter and Happy Passover

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter

I know I have been M.I.A. lately and I have a lot of catching up to do — replying to comments, visiting my favorite blogs, etc.  So I will say hello again by wishing you all a very happy Easter or Passover.  Warmest wishes to you and yours — and I will be visiting your blogs again soon!

I’ll leave you with some Easter photos…  You may remember the pink bunny cupcakes from one of my original posts: Pink Bunny Cupcakes and Good Samaritans.  And the new photos are of the boys hunting for Easter eggs in the living room this afternoon.

Cheers!

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter egg hunt

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter

Easter Cupcakes 2012

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's Easter

K & the Easter eggs

This story (which you may have already read here) was written in response to The Green’s Study’s “Worst Job I Ever Had” Contest.
I am grateful to Michelle at The Green Study for awarding me an Honorable Mention (including a donation made in my name to The Red Cross, a lovely mug, postcard, and a feature spot on her blog today). I am honored that she could look past its disturbing nature and thought it worthy of a prize! 🙂
Be sure to check out the other winning entries — along with Michelle’s blog (TheGreenStudy.com) — it’s terrific! Thanks!

Michelle at The Green Study's avatarThe Green Study

canstockphoto4598050An Honorable Mention from The Green Study “Worst Job I Ever Had” contest goes toLeisha at cancerinmythirties for a job where the Ick Factor seemed age inappropriate.

She was sent one The Green Study Coffee Mug, a cheesy postcard from Minneapolis and I made a $25 donation to her local Red Cross chapter.

The Worst Job I Ever Had — OR — A Hairy Guy & an Old White House

by Leisha at cancerinmythirties

I was eleven years old.  I’ll give you a minute to picture an eleven-year old. At 11, you are just a kid.  So much to learn.  So many mistakes to make.  You still need someone to look after you.

But we needed the money. So I placed an ad in the newspaper:

Summer Babysitter/Mother’s Helper:  Responsible 11-year-old girl available to care for your child(ren).  CPR-certified.  3 years experience.  References. Light housekeeping/cooking if needed.

I received…

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Skin Cancer Too? Really?!

Photo Credit: nation.com.pk

So the week before last I had some biopsies done.  I had postponed this followup visit to the dermatologist for, oh, about a year and a half.  Yep, I know.  But I’m sure you get it.

The previous two visits had ended with biopsies, some rather large and deep.  The results were mixed — some of my sacrificed moles were fine, others had pre-cancerous cells.

When my first 6-month followup came around, I canceled because, well, I was tired.  I had just finished radiation and was getting weekly infusions of Herceptin that my body wasn’t reacting well to.  And I was spending plenty of time at the hospital and Cancer Center. I just couldn’t deal with one more thing.  Then I just never bothered to reschedule.

So last month I finally picked up the phone and called.  Fast forward to my appointment.  They did a quick once-over, saw some areas of concern, and then scheduled me to come in for biopsies the following week.  I reluctantly but dutifully returned and got a bit nervous when there were two doctors, a nurse, and a tray of scalpels in the room.

It was less involved than it had been on previous occasions.  I was on my side when they took the mole that was on the fringe of my chest radiation field.  After cutting it out, the doctor stitched it up quickly, but I could feel the blood dripping down my back.  They scrambled to get it cleaned up as I mentioned that I was on aspirin therapy so I was a bleeder.

Image

Photo Credit: dermnetnz.org

They then moved to the lesion on my forehead.  This was the one that had concerned me for months.  It didn’t look like much, but every time I washed my face, even gently, it bled.  I thought this was odd and it was really what had inspired me to schedule the appointment.  The three doctors I saw the first week agreed and mumbled something to each other about act-something keratosis turning into cancer.  And then the two new doctors on biopsy day were mumbling the same thing to each other after looking at it with their special little scope-y things.  The the one turned to me and said it was likely actinic keratosis that became cancer, but I didn’t pay much attention.  I couldn’t have skin cancer, too.

When they got to my head, the numbing needles didn’t really do their job.  Thankfully it didn’t take too long.  But they couldn’t stop the bleeding.  Pressure wasn’t working, so the nurse passed aluminum nitrate (I thought they used to use silver nitrate?) to the doctors and they were finally able to stop it.  They taped me up and sent me home with an appointment card to have my stitches removed and receive my results in a week (last week).

I returned last week and was told that the area on my head is skin cancer.  They said that I would need to schedule my surgery with the Mohs or chemosurgeon at the hospital.  They asked me to head over there to schedule it in person.  Since I had the biopsies done at the hospital, this meant walking across the hall to the Mohs surgery department and the sole surgeon in our area who is trained to perform this type of surgery.

But that was still too long a walk for me at that moment, so I skipped out and went home.  I still haven’t scheduled the surgery.

I try to avoid feeling sorry for myself or dwelling on things that I can’t change.  But, really?  I mean it sounds like this one isn’t that big a deal, especially in comparison to the breast cancer, but I was a bit incredulous when they first told me.

I began wondering about statistics.  “What are the chances of having been diagnosed with two distinct types of cancer before the age of 37?”  I consulted the internet and still don’t know because I was sidetracked by the search results.  Turns out that it is not really understood why someone in this age bracket would develop one cancer, let alone two.

Well, I’ll just have to do my best to avoid a third.

P.S. Please do something for me.  Schedule a skin cancer screening — it’s quick and easy.  And you aren’t too young!

*** I am very sorry to say that a couple of months after I wrote this post, my little sister was diagnosed with MELANOMA, the deadliest form of skin cancer.  So I’d like to reiterate the “p.s.” above.  If you notice something that isn’t normal for you, be it a breast change, an odd-looking mole, or some other concerning symptom, please get it checked out.  It’s important, you are important, and you are not too young for cancer.

Weekly Photo Challenge: Lost in the Details

The Daily Post’s weekly photo challenge topic for this week is: Lost in the Details.

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s hydrangea flowers blue

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s hydrangea flowers blue

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s corning museum of glass lost in the details young

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s corning museum of glass lost in the details young

To participate in this week’s photo challenge, please visit:

http://dailypost.wordpress.com/2013/03/01/weekly-photo-challenge-lost-in-the-details/

or

http://dailypost.wordpress.com/category/photo-challenges/

Thanks for visiting!

Weekly Photo Challenge: Forward — Boys at the Beach

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's beach kids forward

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's beach kids forward young

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's beach kids forward young

If you would like to participate in The Daily Post’s Weekly Photo Challenge:

http://dailypost.wordpress.com/2013/02/22/forward/

http://dailypost.wordpress.com/category/photo-challenges/

Thanks for visiting!

Happy Valentine’s Day

cancerinmythirties.wordpress.com valentine's day breast cancer thirties 30's 30s young

I thought I would take a minute to wish you all a very happy Valentine’s Day.

I was unable to eat and drink today because of a test I needed to fast for.  So when H and my sons came to pick me up from the hospital at 4 this afternoon (and I was cleared to eat & drink again), I was both hungry and thrilled.

I had big plans for the evening with my two Valentines (my twin sons).  But I was too tired to follow through.  I could barely keep my head up at the dinner table.  It wasn’t long before I needed to retreat to the coziness of the couch and my thick blanket and loyal dogs.

I thought my boys would be disappointed — they usually are when I need to lie down.  But they amazed me by understanding my exhaustion.  They thanked me for making their special Valentine cards (I stayed up all night last night crafting Valentines for them and for their teachers) and for the little gifts I made for them.

And then they brought me the gift they made for me.  They found an unused box and filled it with 2 new rolls of Scotch tape, a giraffe-shaped soap dispenser, and some special things from around the house (seashells, bits of coral, a photo of a sea turtle).  They then decorated sheets of copier paper and wrote “To Mom” and “Love, Us” on them.  They wrapped the box in their creations and topped it with an old Christmas bow.

They were grinning from ear to ear when they presented me with their box.  They were taking a rare reprieve from bickering with one another, so I knew this was important!

Struggling to keep my eyes open, and soaking wet and shivering from alternating hot flashes and night sweats that are really day sweats (thank you, radical hysterectomy and Tamoxifen!), I thought I was letting my kids down.  But when they presented me with that special box, I knew I was wrong.  They were happy to have me as their valentine, whatever my condition.  And I realized how lucky I was.

Their squabbling soon resumed and we had to get the homework show on the road, but I still felt like a lucky girl.

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s young twins valentine's day flowers

Tonight I realized that I have two very special valentines.

I hope that you, too, have a special person/child/dog/cat/friend/goldfish in your life.  Good night & warmest wishes, dear readers…

***Reblogging this post because I think it is full of terrific info.
I have been meaning to write a Lymphedema and Cellulitis post since I started this blog, but Denise beat me to it — and I think her post is GREAT, so I’m just going to reblog hers.
I think the section on cellulitis is especially important. I had my first run-in with cellulitis at the end of last may when we were on vacation & I had no out of state coverage. I didn’t know what it was — I thought it was a terrible and painful sunburn (that only appeared on my lymphedema arm (an arm that was fully covered and couldn’t possibly have gotten burned!)). And it did almost kill me. I had to seek emergency care on vacation — and when we got off the plane at home, I had to go straight to the emergency room at the hospital (where I remained for much of the next few weeks). It took multiple hospitalizations, a ton of antibiotics, and a wonderful infectious disease specialist to get it under control — even still, it was September before it was finally considered “controlled.” I just had it again a few weeks ago (on vacation!), but knew what I was looking at this time, so I immediately started on the emergency antibiotics I brought with me, and I came out of it unscathed this time.
Special thanks to Denise! You are doing everyone a GREAT service by posting about LE and especially cellulitis. I hope everyone who has had lymph nodes removed (or who loves someone who has had lymph node surgeries) takes the time to read this!
~L @ CancerInMyThirties

Denise McCroskey's avatar

LymphedivablogWhen the title of this Blog Post entered your Inbox, let’s face it, your heart did not go pitter patter with excitement.  Please try to stick it out!!!  You will learn something and I will attempt to give you a few laughs along the way!   You and your Lymphatic System have something in common–   misunderstood and under appreciated. There are 500 to 700 lymph nodes in the body. Who would think if you have one or a few of those removed, in my case 14, it could cause so much trouble?

My Lymphedema was under control until I picked up those 3 plastic bags of groceries with my impacted arm and then my POOF of Lymphedema came back with a vengeance. Now you cannot yell at me because admit it, you have done it and later regretted it even if you have no chance of Lymphedema.  Who wants to…

View original post 1,328 more words

Weekly Photo Challenge: Unique

The Daily Post’s Weekly Photo Challenge for this week: Unique

I hope you enjoy my photo choices.  To participate in the Weekly Photo Challenge:

http://dailypost.wordpress.com/2013/02/01/photo-challenge-unique/

http://dailypost.wordpress.com/category/photo-challenges/

 

A Lone Coconut on the Beach

 

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A Lone Boy Beneath the Setting Sun (one of my sons!)

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I found this zoo’s fake flamingo enclosure to be rather unique.  It’s not often that you see a display of faux animals at an animal park!

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Thanks for visiting!

“Give me back my peanut butter!” — OR — “My 1st Bucket List Adventure: Part I”

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's young plane airline airliner

Thank you to everyone who cheered me on as I embarked on my first “bucket list” adventure.  I am glad to finally tell you that our intended mystery destination was… Puerto Rico.  Visiting this lovely place has been a dream of mine for many years.  Why?

#1:  Thanks to photos and travel shows I formed this picture in my mind of a beautiful island filled with old world charm and beautiful beaches.

#2:  I have always wanted to visit a Caribbean isle.  Our passports expired long ago and P.R. is one of only two Caribbean destinations (that I’m aware of) that doesn’t require them from U.S. Citizens.  Since it’s the cheapest of the two to reach, it was an easy choice.

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's young puerto rico vacation kids twins beachThere were other reasons, but these were the big ones.  All in all, we were looking for a relaxing tropical vacation.

But this was hardly what we found…  And when I say we, I am referring to my twin 8-year-olds, my husband, and my dear friend, jme.  Jme and I grew up together (she was Jamie back them).  We’ve experienced many milestones together.  And we’ve experienced some significant losses together.  And you may recall that when jme first learned that I had the disease that played a role in her mother’s death, her reaction involved getting on a plane and flying clear across the country to show up on my doorstep.  She is the kind of friend you would feel lucky to have — if you were one of the rare few fortunate enough to know someone like her.  Anyway, she flew across the country again a few weeks ago, but this time it was to say a quick hello to her family before getting on a plane (a bunch of planes, actually!) to seize the day and make some memories with me and my sons.

I’m getting side-tracked already!  Okay, enough backstory…

The First Uh-Oh.

We left the house at an ungodly hour for this region.  Okay, 4 a.m. is probably an ungodly hour anywhere.  But in western N.Y. in mid-January when it is as cold as it is dark, you get the sense that you are violating some unwritten law by being outside at this hour.  It just feels wrong.  Especially when you haven’t slept a wink in a couple of days.

But I was excited and determined.  I had been waiting for this for most of my life.  So my husband (I’ll refer to him as “H” for husband from now on)…  Crap, where was I?  Oh, yes, so H dropped us off and drove off to park our minivan at an economy parking lot nearby.  And we went about the business of checking in for our flights, begging for seats near one another, printing our boarding passes, checking our bags, and ensuring that they were free (thanks to a credit card perk) at the counter.  This shouldn’t have been a big deal, but when 5 people are booked under 5 separate reservations (this is a requirement for getting the huge travel discounts that we do), it is.  No big deal.  Still excited.  Let’s get to security.

Photo Credit:  huffingtonpost.com

Photo Credit: huffingtonpost.com

After taking our shoes off and putting all of our belongings in buckets on the conveyor belt, I was told that in lieu of a traditional walk through the metal detector, I would need to stand in the full-body X-ray scanner.  Not one to speak up or slow a line down, I reluctantly said that I would rather not.  I was asked if I was refusing the security measure.  So I explained that I had had enough radiation in my lifetime to grow a tail and start glowing and, thus, I was leery of the X-ray scanner if another option was available.  I told him that I would prefer the pat down option.

This is not me in the scanner.Photo Credit:  http://www.aetherczar.com

This is not me in the scanner.  I wish I had her butt, though!
Photo Credit:  www.aetherczar.com

The T.S.A. agent was rather smug and made me feel as though I was I causing a major problem.  He set me off to the side and told me that I would have to wait for someone to come to give me a pat-down — and did I want to reconsider in lieu of being a giant P.I.T.A.?

I told him I’d wait for the pat-down.

When the patter-downer arrived, she asked if I would like to have it done out in the open or if we should go to a private room.  I jokingly said that I’d had enough surgeries to make my dignity a non-issue and told her to go ahead right there.  She smiled and began.  It was my first pat-down and not a big deal.  It did take much longer than I expected, especially given that I normally walk through the metal detector and that’s it — quick and simple.

I passed, of course, but my jar of peanut butter didn’t fare so well.  It didn’t cross my mind that the sealed jar of organic peanut butter I brought to make everyone’s sandwiches with during the long day of travel wouldn’t make it through security.  Alas, it did not.  And my inconvenienced T.S.A. agent friend seemed all too happy to confiscate it.  Since I would much rather airport security be more cautious than less, I happily sacrificed my jar of contraband in the interest of national security.

We finally redressed (coats, sweaters, hats, shoes) and made our way to the gate, still with 5 minutes to spare before boarding.  It was about 15 minutes after we were supposed to board when I started to get a bit nervous.  We were on a tight timeline.  You see, to do this trip on a shoestring budget, we had to book two separate itineraries with two different airlines — and do it all through a 3rd party website.  In hindsight, it was a bit crazy.  But it was the only way — and it should have worked out.

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's young twins winter

We began boarding at about 5:45 a.m., toting our carry on bags out of the warmth of the airport and into the bitter cold and darkness that surrounded the little plane that waited to carry us to New York’s J.F.K.  We shivered as we inched up the plane’s steps and found our seats at the back of the plane.

And we waited.  And waited.  When the pilot announced that we were experiencing mechanical issues and that we wouldn’t be leaving until they were taken care of, I wasn’t surprised.  “These things happen,” I thought.

The surprise came when he later returned to the intercom and announced that they were unable to fix the problem and that we were to collect our things and leave his aircraft while further repair attempts were made.

“What??”  I didn’t understand.  “Why can’t we just wait here while they fix it?  It’s going to take longer to get off and get back on.”

cancerinmythirties.wordpress.com breast cancer thirties 30's 30s peanut butter

Photo Credit:  komu.com

I really didn’t understand — until we were told that we could rebook our flights at the gate.  Uh oh.  We didn’t have enough padding in our schedule to account for this much of a delay.

So we reversed the boarding process and walked the steps down the plane and the steps back up into the airport.  At the gate we were told that we could form a line and the gate attendant would attempt to find alternative flights for everyone.  H immediately took off.  He left the secure area to go out to the main ticket counters at the airport entrance to see what could be done there.  So while jme and the boys sat patiently, I stood in gate counter line with a bunch of other passengers and tried to figure out how to get us to Tampa, Florida in time for our JetBlue flights that afternoon.  I knew that if we missed our flight out of Tampa, our trip would not happen.

It still seemed possible to get to Florida.  But it wasn’t.

——

There’s more to come… I just know that if I break without posting this first installment, it will be harder for me to carve out the time to finish it later.  And I know it’s not that riveting a story to warrant a cliffhanger, so thank you for indulging me!

Reblogging a post from c4yw.wordpress.com (the official blog of the Annual Conference for Women Affected by Breast Cancer). As another young woman with breast cancer, I have touched on the dangers of BPA and other chemicals linked to cancer a number of times in my blog. This post was written by Emily, a 10 year survivor who is educating others about environmental links to (breast) cancer.
Thank you, Emily — and thank you C4YW!
~L of cancerinmythirties.wordpress.com

cfouryw's avatarC4YW

C4YW is just a few weeks away, and we are excited  to see all of the strong, thriving young women who are planning to attend! Today the C4YW Blog is happy to introduce Emily Cousins, another young woman working hard to better herself and other survivors for her first entry! Check back  as Emily shares with us her insights on the studies of the environment and breast cancer. Be sure to visit the website and register for this year’s event in Seattle!

Emily Cousins

I was diagnosed with breast cancer when I was 32 years old and in the ninth-month of my first pregnancy. I urged my doctors to give me aggressive treatment because I wanted to live for my new baby. Since then, I have religiously done follow up exams, had screenings, and undergone biopsies. Now, 10 years later, I am considering removing my ovaries to reduce the amount of estrogen…

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Free Pancakes for a Good Cause… And more free pizza!

Just a quick post to let you know that tomorrow, February 5, 2013 is “Free Pancake Day” or “National Pancake Day.”  Visit your local IHOP tomorrow to receive a free short stack of buttermilk pancakes and you can either accept your fluffy and delicious pancakes and be on your merry way…or make a donation to help the Children’s Miracle Network Hospitals© or a local charity of your restaurant’s choosing.  

The details:

“Since beginning its National Pancake Day celebration in 2006, IHOP has raised more than $10 million to support charities in the communities in which it operates. On February 5, 2013, guests from around the country will once again celebrate National Pancake Day at IHOP and enjoy a free short stack of Buttermilk pancakes. In return for the free pancakes, guests will be asked to consider leaving a donation for Children’s Miracle Network Hospitals© or other designated local charities.”  

Great pancakes for a great cause!

And if you still have room in your tummy, consider a stop at Pizza Hut to try their new Pizza Sliders.  According to Bloomberg’s Businessweek.com, Pizza Hut will be giving away samples of it’s newest product between 4 and 7 p.m. on Tuesday.  These mini pies will measure 3.5 inches across, while a personal pie is 6 inches.  I’m assuming each visitor will receive a slider of their own, but you can call your local Pizza Hut for details if you are interested and don’t want to stop in without knowing the details. 

Happy eating — and giving, too!

 

 

    

FREE Papa John’s Pizza!

cancerinmythirties.wordpress.com breast cancer thirties 30s 30's young free pizza papa john's

Photo Credit: Papa John’s Facebook Page

My bucket list adventure post is a work in progress, but in the meantime, I couldn’t resist this opportunity to pass along an opportunity to win a FREE pizza.

I have neglected the “Freebies & Special Deals” section of my blog, so I hope this post makes up for that a bit!

Here’s the deal:  Papa John’s is giving a FREE pizza to everyone who guesses the outcome of the Super Bowl coin toss.  This gives everyone who enters a 50% chance of winning a pizza!

And since they allow up to 4 entries per household, this means that as long as you live with someone, your house is guaranteed to win a FREE pizza!

It’s simple to enter.  Just visit:

http://www.papajohnscointoss.com

Then fill out the entry form.  Be sure to NOT select the “yes, please send me offers and spam” boxes if you don’t want to receive future texts and emails from Papa John’s (or check them if you do — who knows, maybe there will be more free pizza offers for you?).

Make sure you select Heads or Tails at the top.  If you want a guaranteed pizza, make sure the 2nd entrant chooses the opposite side of the coin.

Remember, you & your housemate/spouse/child/dog must have different email addresses or you will be disqualified.  I read that up to 4 people per household could enter, but we just did 2 to play it safe.

Be sure to enter TODAY by 11:59 p.m. PST.

“Winners will receive a promotion code good for a FREE LARGE 1-TOPPING PIZZA, which can only be redeemed at papajohns.com. The promotion code will be emailed to winners on Monday, Feb. 4, 2013 by 11:59 p.m. PST.”

As a bonus, after you complete your entry, you will see a code worth 50% off a large pizza that you can use now.  We priced it out to be $6.48 including tax for a large cheese.  Not a bad deal!

ENJOY!

*If you have any questions, just post them below.  And if you enjoy non-cancery posts like these & would like me to do more of them, please click the LIKE button.  Thanks!*

Weekly Photo Challenge: Love

Well, I have returned from my first adventure…but things have been far too hectic and I have been far too exhausted (and ill with cellulitis) to write about the experience yet.  But it is a post I am looking forward to sharing!  In the meantime, I thought I would return with a photo challenge post.  Thank you so much for all of the likes and comments on my last post — and for being there to cheer me on…

These may not be the greatest photos, but to me, they are wonderful representations of this week’s photo challenge topic, “love.”

There were many contenders, but I am far too tired to add them all (and I don’t want to bore you!), so here are just a few.  I may come back to add more at a later date…

Thank you for reading!

————————————————————————————————-

It was Christmas and my littlest sister decided that after all of my chemo and surgeries, the best gift she could give me would be a little companion to help me weather the remainder of my cancer treatments.  So she chose this sweet little mini dachshund and presented her to me with a red ribbon around her furry little body.  Ginger has spent many hours snuggling with me and giving me comfort in the two years we have been together.  And she is a wonderful reminder of the special kind of love sisters sometimes share.

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———-

Another Christmas photo…  I was sick and so tired.  And my sweet miniature schnauzer, Mattie, snuggled up next to me.  I had so much to do to get ready for a busy day of making our Christmas rounds that day, but I couldn’t resist the opportunity to lay there with my special girl.  And I am so glad that I did because she died suddenly of cancer a couple of months later.   She loved me unconditionally and I miss her as much today as I did when she first died.

cancerinmythirties.wordpress.com breast cancer thirties 30s young dog dogs illness

———-

And my boys…

cancerinmythirties.wordpress.com breast cancer thirties 30s sick dog dogs illness

Weekly Photo Challenge: Love

If you would like to participate in The Daily Post’s Weekly Photo Challenge:

http://dailypost.wordpress.com/category/photo-challenges/

http://dailypost.wordpress.com/2013/01/25/weekly-photo-challenge-love/

 

My 1st Bucket List Adventure

If you’ve left me a comment or sent me an email recently and if I haven’t ‘liked’ or commented on one of your posts lately, it’s not because I’ve been ignoring you…  And not because I’ve been in the hospital (usually a plausible explanation!)  🙂

I’ve listened to your advice and mine, and I have decided to grab the bull by the horns and make Julie proud.  I am on my first bucket list adventure!

You may recall that Julie (who died when we were 31) was one of my 2 very best childhood friends.  I have mentioned the other (who was also best friends with Julie)…and I am happy to say that she is here with me.  We are seizing the day together!

It has already been quite an adventure — or misadventure, if you add up all of the things that have gone wrong! — and I am looking forward to telling you all about it.  But since I technically don’t have internet access, it will have to wait.  In the meantime, I want to thank you all for giving me the extra push, the courage to ‘just go for it’ and make Julie proud…

Weekly Photo Challenge: Illumination

Weekly Photo Challenge: Illumination

If you would like to participate in The Daily Post’s Weekly Photo Challenge:

The Daily Post’s Weekly Photo Challenge

Weekly Photo Challenge: Illumination

cancerinmythirites.wordpress.com breast cancer young 30s illumination daily photo challenge kids

cancerinmythirites.wordpress.com breast cancer young 30s illumination daily photo challenge kids

cancerinmythirites.wordpress.com breast cancer young 30s illumination daily photo challenge kids

cancerinmythirites.wordpress.com breast cancer young 30s illumination daily photo challenge kids

Messed Up

cancerinmythirties.wordpress.com breast cancer death kids children family life loss marriage
You’ve won another argument
because I have given up
I swore I wouldn’t fight back anymore
But I gave in this time
I engaged, I didn’t just let it go
Until I came to my senses, that is
But it was too late
How do you stop a freight train that’s barreling down the tracks?
You are unkind to me
Your words are bitter and seering
You have hurt our children
inside and out
You prefer things to people
but you turn on your charm so no one will see through your facade
And facade it is
It is not real
You are not real
But this is all painfully real
You are selfish
manipulative
indignant
Lies roll off your tongue
like raindrops off rooftops
Yet you will outlive me
You will see our children grow
And hold their children in your arms
And you won’t care
How could the universe have gotten it so wrong?

Weekly Photo Challenge: Resolved — In Memory of Julie

cancerinmythirties.wordpress.com breast cancer thirties 30s young bilateral mastectomy death loss grief

Julie (left) & Me

I missed last week’s photo challenge, but when I saw this week’s topic, I had to pull out my old photo albums.

The photos you see here embody my New Year’s resolution for 2013.  What is it?

***To appreciate that life is sometimes too short — and to fulfill some of my bucket list wishes.***

The photos I’ve chosen are from a defining point in my life.  Why was this little window of time, this blip in my life, so special that I feel the need to highlight it here?

Because the girl in the photos with me is my friend Julie.  She was one of my very best friends growing up.  I loved her like a sister.  We laughed together, cried together and reached many a milestone together.

These photos of Julie and me are from a once-in-a-lifetime trip we took together.  I know, I know, people say “once-in-a-lifetime” but they don’t always know that for sure.  Sometimes they just say this to be dramatic.

But I am saying it because I know it is true.  I know that Julie and I will never take another trip together.  In fact, we will never laugh or cry or meet another milestone together again.  Ever.

Because Julie is dead.  She was killed in a car accident 5 years ago when we were just 31.

It still takes my breath away when I remember that she is really gone, but I often find myself smiling as I think of the time we spent together.

Though Julie’s death was tragic and horribly sad, her life was the opposite.  Julie exuded warmth and beauty.  She was positive and sweet and lived her life to the fullest.  She was courageous and didn’t let anything stand in her way…

…including me.  You see, I didn’t want to go on that trip.  I had never done anything like that before.  I wasn’t adventurous.  I didn’t think I deserved the opportunity to get on a plane.

It was about a month before our high school graduation when Julie proposed the idea.  Her exchange student for our senior year, now like our new sister, would be returning home to Mexico just after graduation.  What if we went to Mexico to stay with her over the summer?

cancerinmythirties.wordpress.com breast cancer thirties 30s young bilateral mastectomy death loss grief

I was not the adventurous type and I opted to stay home and work until we started college in August.  Plus, I needed to be home to help care for my little sisters.  And I had never done anything just for me before.  How could I start with something so drastic?  No, I would not go.

But it wasn’t really up to me.  Julie would not listen to my protests.  She jokingly threatened to unfriend me (we had been very good friends since we were kids) if I didn’t commit to going.  She said she knew what was best for me (and I admit that she often did).  So, on one of the many evenings I spent at her house, she made a final plea.  Again I refused.  We were munching on her delicious homemade chocolate chip cookies when she picked up the phone and called the airline (this was before you could use the internet to book your tickets).  She pretended to be me and booked my tickets while I stood in her kitchen.  Though I halfheartedly protested and though I feigned anger, I was secretly delighted.  I knew I would enjoy this special time with Julie.  And I knew I was going to miss Judy (her exchange student), who was now a dear friend and that this was my chance to see where she lived and to say a real goodbye.

This was going to be my first real adventure, my first and last hurrah before heading off to university (20 minutes away – another story!) in the fall.

So we graduated from high school, Judy left for her home in Mexico, and we embarked on our adventure 8 days later.  Before stepping off the plane in Tucson (and driving the 4 hours across the border to our friend’s house), I had been a shy straight-A student who hung out in the teachers’ lounge after school because I could always relate better to people older than me.  Between sophomore & senior year, I took every single Advanced Placement class (and there were a lot!) our high school had to offer — and aced them all.  I was voted “Class Introvert” and could get A’s on Calculus tests without studying.  I thought A.P. Physics and Chemistry were fun.  I had been babysitting since I was eight and got my first “real” job the moment I was old enough to get a work permit.  I balanced school and mountains of homework with two afterschool/weekend jobs.  I volunteered a ton — you name a volunteer activity and Julie, jme and I signed up for it.  I had a resume filled with achievements.  I had a full scholarship to Cornell University and scholarships to a number of other prominent schools for Engineering or Biochemistry/Pre-Med waiting for me and I had every intention of continuing to be that people-pleasing, old-before-my-time nerdy girl…

I thought that maybe before college I would do something crazy like cut my long hair or start wearing lipstick.  I had no idea how this trip was going to change me.

It was an incredible 3 weeks.  Because Julie and I were staying with Judy and her family, we “lived” in the heart of a non-touristy part of Mexico where I was the only person with blondish hair for many, many miles.  We got a taste of what it was like to grow up there.  What an amazing way to see another culture.  Our many adventures included a 28 hour (total) roundtrip escapade on an old, steamy, smelly, jam-packed bus.  We were headed to see another friend (Juan–also a former exchange student) in Mazatlan.  The bus trip came complete with dirt roads, middle of the night stops by gun-toting “bandits” in the midst of nowhere, and people who were so scary that we slept in shifts because there had been a number of recent American kidnappings on buses just like ours.  As the only Americans who had probably set foot on our bus in a very long time, we figured we were targets, which made it that much more exciting for my friends (and nerve-wracking for straight-laced me).  When we stumbled off the bus, though, I realized that it was all worth it.  The area was the most beautiful place I had ever seen.  The days were amazing — swimming in the ocean, drinking pina coladas in the pool, parasailing and so much more — things I never dreamed I’d be doing.

cancerinmythirties.wordpress.com breast cancer thirties 30s young bilateral mastectomy death loss grief

Julie parasailing in Mazatlan

And the nights were even more incredible.  More things I never dreamed I’d do.  All of a sudden quiet, shy me who hadn’t really dated much was dancing on tables at these gorgeous open air bars, forgetting about all of the responsibilities waiting for me back home, and getting kissed by older guys in their 20s (Mexicans & Americans alike) who could have stepped off movie sets or off the pages of GQ.

On the bus ride back to Judy’s city, I felt like a new person…  All of a sudden I had gone from being a cornerstone on the math team to someone who had 25 year-olds competing to spend a few minutes on the dance floor with her.  It was fascinating and exciting.

Our next stop was a lovely little town on the Gulf with mountains in the background.  Here we had more adventures with sangria, late-night swims, and mechanical bull-riding.  Then Julie’s older brother (who was in a band & lived in San Francisco) asked us to take a couple of days out of our Mexican adventure to come to see him.  Julie hadn’t seen her brother in a while and she had a huge crush on his roommate, so it was a quick yes from her.  All we had to do was drive to San Diego & he’d have tickets waiting for us at the airport.  Along the way we stopped to visit Judy’s cousins in Tecate (right next to the Tecate beer factory) for another wonderful night filled with yummy food & drinks and happy people.  No matter where we went (with the exception of on that bus to/from Mazatlan), I never heard a word of complaint or saw a frown.  Regardless of what everyone did or didn’t have, the people we met/lived with were warm, welcoming, generous, and positive.

Even the drive up to the U.S. was an adventure.  And then we were off to San Francisco, a place I had always wanted to visit.  We didn’t do anything too exciting, but even a trip to the grocery store was fun with Julie.  And, as it happened, the roommate guy she had a crush on actually “liked” me.  Julie was very gracious about it and happily let me have my moment with him.  He was 25 and an engineer on a big naval ship — the U.S.S. Abraham Lincoln.  Though he was quite handsome, he was nerdy like me & we were instantly drawn to each other.  It was odd for me to realize that I had spent my teenage years feeling awkward and burying my nose in books — and all I had to do was take my hair out of my ponytail and throw a pair of jeans on (and talk to people 7 or 8 years older than me!) and voila…  Eric and I stayed up all night every night talking.  And then we all spent the days together seeing the sights.  It was a total departure from the “me” I knew, someone who had only had a few high school boys show any interest in her.  [Eric continued to send letters & call me (and my mother!) for years after this trip.]

cancerinmythirties.wordpress.com breast cancer thirties 30s young bilateral mastectomy death loss grief

Julie in Spain — wasn’t she lovely?
(I didn’t take this photo — I never made it there)

Before I knew it, Julie, Judy & I were flying back down to San Diego and driving back into Mexico…  And shortly afterward, we made the long trek back to Arizona to catch our plane.  Judy’s family had a condo near the airport, so we spent one last night there — the 3 of us girls — laughing, talking & drinking more sangria in the hot tub (I hadn’t even been in a hot tub (or a condo for that matter!) before).  It was a wonderful way to end our trip.

That summer was — and remains — the best of my life.  After that I started college as a new person.  Still the old nerdy straight-A student who loved math on the inside, but with a new look and a newfound confidence on the outside.  I was always so grateful to Julie for that and so many things.

That trip was the last time I saw Judy… Until 5 years ago — for Julie’s funeral.  Julie was killed by a drunk driver in Spain, a country she loved so much.  The special young man she loved survived, but he was seriously injured — and he had lost the love of his life right before his eyes.  I was no stranger to loss or tragedy, but this was beyond anything I could wrap my mind around.  When jme, who had grown up with Julie from the age of 3, phoned to tell me what had happened, it was an absolutely heartbreaking call.  Jme got on a plane to come back home from Seattle.  And Judy flew from Mexico to stay at my house so we could be together to bury our dear friend…

Though her life was short, Julie’s impact was great.  She made everyone feel special and she touched lives here and across the Atlantic in deep and lasting ways.  The world was a far better place because she was in it.

cancerinmythirties.wordpress.com breast cancer thirties 30s young bilateral mastectomy death loss grief

Julie (rt.) and me
Early morning somewhere in Sonora, Mexico

So, this year I resolve to be more like Julie.  I resolve to check some things off my bucket list (and to make a bucket list).  I resolve to just “go for it” more.  I resolve to work on living my life to the fullest (I’m sure it will take me a while to get there, but I vow to work on it).  And I plan to honor her memory by trying to find and nurture the little light that she saw inside of me when we were just girls on the edge of new beginnings.

In Memory of Beautiful Julie – 1976 – 2007

********************

Weekly Photo Challenge: Resolved

If you would like to participate in The Daily Post’s Weekly Photo Challenge:

The Daily Post’s Weekly Photo Challenge

Weekly Photo Challenge: Resolved

A long overdue thank you…

I can’t believe I have let so much time pass since receiving award nominations from three of my favorite bloggers…but I’m embarrassed to say that I have!

So here is my long overdue ‘thank you’ to Kat B. of Travel. Garden. Eat for a Liebster Award nomination…to Cancer Curmudgeon for nominating me for the Very Inspiring Blogger Award.  And thank you to another of my faves, The Green Study for a Reality Blog Award.

Thank you all so very much!  I am over the moon with gratitude, especially because I admire your blogs so much…

To formally accept these award nominations, there are a few things I must do.   Here goes…

breast cancer thirties 30s liebster blog

The Rules for the Liebster Award are as follows:

  • Link back to the blogger who gave you this award – http://travelgardeneat.com/2012/11/29/you-flatter-me-blogger-friends/
  • Post the award to your blog – done!
  • Post 11 things about yourself – see below
  • Answer the questions asked of you, plus create 11 new questions for your nominees to answer.  (I’m going to fudge the rules a bit and ask my nominees to answer the same 11 questions if they choose — otherwise I might never post this!) – done
  • Nominate 11 people you think deserve the award and link them to your post. – see below
  • Go to their pages and tell them they have been chosen. – This might take me a couple of days!

11 Things About Me:

  1. I love sea turtles, giraffes and elephants.
  2. I have twin boys.
  3. One of my two best childhood friends was killed in a car accident when we were 31.  It’s been 5 years, but I’m still in shock.
  4. My other best childhood friend dropped everything and hopped on a plane from the opposite end of the country when she heard that I had cancer.  (See photo from A Minute Can Make a Difference)
  5. I have 2 dogs.  A big mutt and a mini-wiener dog.  They look like giant and mini versions of each other.
  6. My favorite movie is The Adjustment Bureau.
  7. I was a straight-A student and graduated with Honors.
  8. I love bacon even though everyone tells me I shouldn’t eat it because of the cancer thing.  I just can’t resist!
  9. As soon as my children’s kindergarten class heard that I had cancer, I was overwhelmed by kindness and yummy dinners.
  10. My grandmother died of cancer when I was just a few months older than my own kids.
  11.  One of my dogs is named Kevin. 

Questions for me from travel.garden.eat :

A place you have never traveled to that is on your travel bucket list?

-Hawaii’s Big Island

Book you are currently reading?

-I forget — I think it’s called The Lost Girl

Have you ever bungee-jumped?

-No

Morning bird or night owl?

-Used to be a morning bird.  Now a night owl for sure!

How long have you been blogging?

-Only since June

Which movie can you watch again and again?

-50 First Dates

One of your favorite quotes?

-“I know someday you’ll have a beautiful life.  I know you’ll be a star…in somebody else’s sky.  Why can’t it be mine?”

Your favorite recipe (in full or via link)?

-I’ll have to think about it.  I love to bake, so probably a chocolate cake recipe.

Pet peeve?

-People who repeatedly ask for advice but never take it.

If you could invite anyone to join you for dinner — fictional or real, from the past or the present — who would you invite?

-My grandmother

Your favorite blog post — from your blog!

$50 Straws and How Cancer Changes Everything

or

The Daily Post: Weekly Photo Challenge: Surprise

Now for my Liebster Award nominees:

  1.  Life PortOfolio
  2. sharechair
  3. Yet Another Prostate Cancer Blog
  4. Richert Images
  5. rarasaur
  6. Ron Mayhew Photography
  7. The Blog of Otis
  8. Wind Against Current
  9. Westlake Musings
  10. Cancer Curmudgeon
  11. FiftyFourandaHalf

**********************

Very Inspiring Blogger Award

The rules for this award are:

Post about this award and the blogger that nominated, tell 7 (random) things about myself and nominate & notify 15 other very inspiring bloggers.

First, the blogger who nominated me…  Cancer Curmudgeon.  I love her blog for her ‘tell it like it is’ attitude and her engaging posts.  I also love the way she finds the best of what’s out there and reblogs topics that her followers like me!) want to read about.  Thank you for the nomination, Cancer Curmudgeon!  And thank you for your blog!

I have decided to spare you and not share another 7 details about myself — I think I bored you enough above.  I am skipping straight to my list of nominees:

  1. inspired2ignite
  2. Clanmother
  3. Prego and the Loon
  4. Three Hundred Sixty-Five
  5. Keeping It Real
  6. The Retiring Sort
  7. born by a river
  8. Mirth and Motivation
  9. mainelyhopeful
  10. Green and Clean My Life
  11. Bucket List Publications
  12. Jump For Joy! Photo Project
  13. Campfire Memories
  14. Denise4Health
  15. The Sarcastic Boob

***************

The Reality Blog Award

This award has NO rules!  Yay!  But I will follow The Green Study‘s lead here and answer a few questions:

1) If you could change something about your life what would you change?

My marriage

2) If you could repeat an age, what age would it be?

25.  I would like a do-over now that I know better.

3) What one thing really scares you?

Dying before I have a chance to have a real and positive impact on my children’s lives.

4) What one dream have you not completed yet and do you think you will be able to complete it?

I would like to have my novel/autobiography (not yet fully written!) published.  I doubt that I will be able to accomplish this goal before I leave the earth.

5) If you could be someone else for the day, who would you be?

Someone who lives on a lovely tropical island.

And my award nominees are:

  1. Three Hundred Sixty-Five
  2. The Retiring Sort
  3. FEC-THis
  4. Chris Martin Writes
  5. Cancer Curmudgeon
  6. Flickr Comments

———————————————————————————-

Thank you, Travel.Garden.Eat., Cancer Curmudgeon, and The Green Study!

A Minute Can Make a Difference

cancer in my thirties breast 30s bald

I was writing a ‘thank you’ post when I received an email about a petition to ban BPA from our food supply (and a couple of others), so I had to put my other post on the back burner for a minute to pass these petitions along.  If you remember my Please Don’t Eat Anymore Plastic, you know how I feel about issues like these.

If you have a minute, please sign these petitions — you can make your name public or not.  Thanks so much.  If we all do a little, we can make a big change together.

Petition to ban BPA, a carcinogen found in plastics, etc. [“BPA is still used in various food packaging, soup cans, soda cans, and more. With all of the serious health risks BPA presents, why is it still being used in any products at all?  There are perfectly safe alternatives to BPA, yet manufacturers continue to use the chemical.”]:

http://www.thebreastcancersite.com/clickToGive/campaign.faces?siteId=2&campaign=BPAChemical2

———

Petition to stop insurance companies from dropping patients with breast cancer:

http://www.thebreastcancersite.com/clickToGive/campaign.faces?siteId=2&campaign=InsuranceCancellation

————————————-

Petition to ban dangerous chemicals in cosmetics:

http://www.thebreastcancersite.com/clickToGive/campaign.faces?siteId=2&campaign=SafeCosmetics

Thank you!

The Daily Post: Weekly Photo Challenge: Surprise

surprise the daily post weekly photo challenge cancerinmythirties.wordpress.com breast cancer feeding the stingrays philadelphia camden, nj Adventure Aquarium thirties 30s mom motherhood family sting ray tank touch wading

It was April 12, 2012.  It was the anniversary of terrible surprises.

I won’t name them all.  Just a few.

It was the anniversary of the day I was certain that my unborn babies and I would die in the hospital.  It was the day after Easter.  I had been hospitalized with preeclampsia since the week before when I had gone to my check-up and was told that I needed an emergency induction.  I was sent next door to the “best” hospital in our region.  The hospital with the Level III NICU.  The hospital that people traveled across counties and hundreds of miles for.  I had been in active, induced labor for 4 days by April 12, 2004.  By then, the preeclampsia had become severe.  I was so sick.  I was shaking.  I was bleeding (from a yet-to-be diagnosed placental abruption).  I was being pumped with high doses of pitocin to keep me in active labor — and competing doses of magnesium sulfate because my blood pressures were so dangerously high.  And I had gained an inconceivable almost 100 lbs in edema weight since my admission into the hospital.  My organs were shutting down.  I was hearing Christmas music when there was no sound.  I was dying.  And my babies were, too.

Fast forward to April 12, 2005.  One year later.  Two days before my babies’ 1st birthdays.  The day the woman who was like a second mother to me took her life… a woman who also had breast cancer young (but for her, her diagnosis came in her 40’s)… a woman who was also the mother of one of my two very best childhood friends.  I had known her for what felt like my whole life.  I had lived with her during a rough patch in my life.  And now she lived around the corner from me in a house matching mine.  And she had reached out to me and asked me to spend more time with her…but I was so wrapped up in my own traumas and exhaustion that I didn’t see her as much as I should have.  I thought there would be more time.  And then the call came on April 12 that I was too late.  We all were.

And fast forward ahead again to April 12, 2010.  This was the day before I learned for sure that I had breast cancer.  Nuff said.

But…

I had to put these difficult/horrible memories the back burner because April 12, 2012 was 2 days before my twin sons’ birthdays.  It was also their Spring Recess from elementary school.  So we wanted to do something special and make some happy memories for their birthdays.

We packed up the car the day before and set our sights on Philadelphia.  I never been there, but we had free passes for the nearby Adventure Aquarium in Camden, NJ.  Since it was “only” about an 8 hour drive and we had heard the aquarium was something special, we couldn’t pass the opportunity up.

April 12, 2012.  After a struggle with traffic and an almost unsuccessful quest to find cheap parking, we arrived at the aquarium much later than I had planned.

And I was already exhausted.  You see, only a couple of weeks before I was lying in an operating room while my gynecologic oncologist was performing a radical hysterectomy and oopherectomy on me.  I was 35 and wanted another baby.  But what all of the breast cancer crap would have made unwise and extremely difficult, large masses that we were all certain would come back as ovarian and pelvic metastasis, made perfectly impossible.

surprise the daily post weekly photo challenge cancerinmythirties.wordpress.com breast cancer feeding the stingrays philadelphia camden, nj Adventure Aquarium thirties 30s mom motherhood family sting ray tank touch wadingDespite this, I entered the crowded aquarium in a wheelchair and with a twinkle in my eye.  I was planning to enjoy the day with my boys.

It was when I was handed a map at the admission desk that I first saw it.  There was something special going on today.  At precisely something-o’clock (I don’t remember when the something was!), a few lucky aquarium goers would be selected from the crowd for a special stingray encounter.  Now this wasn’t your average aquarium encounter.  This was an opportunity to wade into the large stingray pool to hand-feed the rays!

I was determined to be one of the lucky few.

But there were a few major issues with my plan.

  1. My plan wasn’t a plan.
  2. I generally don’t win things.
  3. The place was packed.  And I mean packed.  Everyone with kids on Spring Break clearly had the same idea as we did.  It seemed like the whole east coast was in the aquarium.  There was no way I would be able to get anywhere near the stingray tank, let alone in it.

Nevertheless, I told my husband and my boys that I would be in that tank that afternoon.  My husband told me to give it up.  There was no way.  So we visited the other exhibits and made our way through the aquarium.  We were looking at the hippos in a giant tank filled with hippos, fish and hippo poo when I said, “Oh no, it’s 5 minutes til something-o’clock!”

Unable to run because of the surgery and my post-chemo fatigue, I asked my husband to push me over to the exhibit, an exhibit located almost all the way over on the opposite side of the aquarium.  He told me that it was impossible to get there in 5 minutes and that even if I did, I would never get near the tank and I would certainly never be chosen.

No matter.  I called in all of my favors and groveled, something I never ever never do with him.  I was determined.  So we weaved in and out of the crowds and crowds of people and finally made our way around after what felt like an eternity.  When we arrived near the entrance of the giant stingray room and pool, I emerged from the wheelchair and we left it outside.  I walked into a densely packed room filled with children and adults alike.  It was chaos.

And we were late.  They were asking the audience 4 questions.  4 people who were given the opportunity to answer the questions and who answered correctly would be invited into the tank.   The selection process had already begun.  I had already missed question 1.

Question 2 came and at least 50 hands shot up in a crowd of many more than that.  The tank-keeper wouldn’t even see me.  She selected a child in front and, with the assistance of her dad, the girl gave the correct answer.  Question 2 came.  50 or 60 more hands.  She chose a teenager in front who also answered correctly.

The final question came.  “What kind of seastar is this?”  I knew the answer.  My hand shot up with about 1,000 others.  She asked a child.  Wrong answer.  She asked an adult.  Wrong answer.  I was so buried in the crowd that she would never see me.

But then she pointed in my direction.  “The young lady with the longish red-brown hair.”

“Oh, that’s not me,” I thought.  “I have ugly short not red-brown ‘I’ve had lots of chemo’ hair.”

But then I remembered that I was wearing my lovely wig.  It was me.  She was asking me.  “A chocolate chip seastar,” I shouted!

It was the right answer and I was invited to come out of the crowd to get ready for my encounter.

It was incredible.  I changed out of my winter boots and into the crocs they offered me and we walked up the ramp to be debriefed.  We would be given dead fish parts to hold between our fingers and the rays would glide across our hands and take the carcasses into their mouths.

I could barely contain my excitement.  I had never done anything like this before.

cancerinmythirties.wordpress.com thirties 30s stingrays sting ray weekly photo challenge surprise hysterectomy twins aquarium camden, nj philadelphia mom motherhood infertilitySo I waded into the tank and began feeding these beautiful creatures.  It was an incredible experience.  And I made a new friend, a giant ray who seemed to want to climb into my lap like one of my dogs.  He didn’t take the food from me, but let me pet him as he slid up my shins and splashed me.

When it was over and we were washing our feet off and changing our shoes in the little prep room, I was so overwhelmed with the beauty of the experience that I felt the need to say something to the tank’s keeper.

I told her that I was surprised to have been chosen.  Shocked, actually.  I told her that this was such a special experience for me because for the past 2 years I had been battling breast cancer.  She told me that I was so young and she gave me a hug.  She said that she was a 10 year breast cancer survivor.  She said that though they caught hers early, she still looks over her shoulder, wondering if it will return.  But she said that it also makes her grateful for every day that she is here.

I thanked her with tears in my eyes and we parted.  She felt good about her choice.  And I felt grateful for this once in a lifetime opportunity to wade with the stingrays.

cancerinmythirties.wordpress.com breast cancer thirties 30s weekly photo challenge surprise motherhood mom young

Weekly Photo Challenge: Surprise

If you would like to participate in The Daily Post’s Weekly Photo Challenge:

http://dailypost.wordpress.com/category/photo-challenges/

http://dailypost.wordpress.com/2012/12/21/weekly-photo-challenge-surprise/

Update: Received My Cheap Holiday Cards…

cancerinmythirties.wordpress.com breast cancer card cardstore cardstore.com christmas cards holiday bilateral mastectomy thirties 30s deals freebies cheap

Photo Credit: blackcollegereunion.com

Hello dear readers,

Just a quick update on my “Procrastinator’s Unite” post…

cancerinmythirties.wordpress.com breast cancer kids mom thirties 30s Christmas holidays deals freebies freeI received the “test card” I had mailed to my address and was not expecting much when I opened the envelope.  In fact, the deal on the cards was so spectacular — $0.24 per custom photo card including a FREE 1st class stamp!!! — that I was expecting less than ‘not much.’  I was expecting cardstore.com to close up shop in the dark of the night after I placed my order.  I was expecting them to disappear, papers blowing in the wind, tumbleweed rolling by their empty office building…  I was expecting that they would vanish without a trace, their pockets overflowing with my $13.03 (for 55 photo cards and stamps!!!).

But that’s not how things played out.  I opened the card envelope (complete with a FREE 1st Class Stamp) and…the card is lovely!  The cardstock is nice and is a sustainably sourced paper (bonus!).  And the print quality (on both sides) is quite good.

Now I just hope their prices stay low enough to make my next order a great deal — because I will be back!

Wishing you all the happiest of holidays…

cancerinmythirties.wordpress.com breast cancer kids mom thirties 30s Christmas holidays deals freebies free

Weekly Photo Challenge: Delicate

cancerinmythirties.wordpress.com breast cancer weekly photo challenge delicate breasts lump lymph nodes surgery

PowerPort (port) through which chemo and other medicines and fluids can be administered. Also great for lab draws and scans for which I.V. contrast is necessary. I was reluctant to have the port placement ‘surgery’ back on May 7, 2010. But I am so glad I wasn’t given a choice & was ‘forced’ to do it — it has been a lifesaver!

Weekly Photo Challenge: Delicate

If you would like to participate in The Daily Post’s Weekly Photo Challenge:

http://dailypost.wordpress.com/category/photo-challenges/

http://dailypost.wordpress.com/2012/12/14/photo-challenge-delicate/

GUEST POST: A Holiday Season With Cancer

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*Just so there is no confusion, this is me (NOT Heather)*
Christmas 2010

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I am pleased to introduce guest writer Cameron Von St. James.   I was honored when Cameron approached me to ask about posting an article here.  After reading a little bit about what his family has dealt with, I was also moved and inspired…and I thought you would be, too.  With a new baby to care for and the holiday season just beginning, Cameron’s wife, Heather, was diagnosed with malignant pleural mesothelioma, an aggressive form of cancer.  Their story is both heartbreaking and heartwarming.

Please join me in welcoming Cameron Von St. James…

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A Holiday Season With Cancer

The holiday season has always been near and dear to my heart. It was always a time when my family came together to practice our holiday traditions and give thanks for all that we have in life.

In 2005, I was especially excited for the holidays, as my wife Heather had just given birth to our first child, Lily, and we couldn’t wait to establish our own traditions with our new family. Those feelings of giddiness were stamped out completely when we learned, three days before Thanksgiving, that Heather had cancer.

Our daughter was only three and a half months old when we learned that Heather was suffering from malignant pleural mesothelioma. I knew enough about the disease to be concerned for our future. The anger I felt was overwhelming, and I found myself preparing for the worst.

I dreaded the holiday celebrations that year, during which Heather’s family came to stay with us before she headed off to a treatment center in Boston. During dinners that should have been about seasonal togetherness, we discussed how her family could come to terms with Heather’s deadly disease. We talked about the future of our finances and childcare options for Lily. We made plans to pay for Heather’s expensive treatments, and to my embarrassment discussed how her family could help us stay afloat financially.  Heather and I both worked, but with the new baby money was already tight, and with expensive treatment and travel looming, on top of the fact that we would soon be down to one income when Heather started treatment, we were going to be in real trouble. Heather’s family helped us figure out what we could liquidate for cash, and how much they could afford to pay for. I was mortified and embarrassed, and it would be years before I could look back on that conversation with anything but shame.

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Mesothelioma
Image courtesy of http://www.mesothelioma.com

I was so awash with negative emotions that I couldn’t see what I now see today. I realize now how mistaken I was to look at this time so negatively.  What I see now is that I was being so firmly supported by our family – people who came from afar to be with Heather, Lily and me during our moment of need. They were willing to help us in any way possible, they offered to make incredible sacrifices of their own for our well-being, but I was so weighed down with guilt and fear that I couldn’t see that clearly.

In spite of the odds against her, Heather eventually beat mesothelioma. This holiday season I want to take the time to give thanks for everything that I have; I know how much family means because of how close I came to losing the most important person in my life. I am so thankful for my little Lily’s continued health and growth and for all the people who helped us through our dark times. Thank you so much! You’ve all given me a reason to look forward to celebrating the holidays.

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Special thanks to Cameron and his wife for sharing their story…

Would you like to be featured here?  

If you have something to share, please send me an email:

cancerinmythirties@yahoo.com

                        

Thank You & Happy Holidays!